Symptom time

I don't really want to do this as I try and avoid talking about the fact I'm ill, it's only recently I've taken an interest in research and so forth. I never really saw the point before but having joined twitter I've become a lot more comfortable talking about research, hypothesis, GPs, symptoms and so forth. I don't really feel guilty about it anymore. HIGH FIVE.

The most reassuring thing is reading that other people are in the same situation as you and have the same symptoms, only a sick person could understand how this feels.

I know I covered some of this in an earlier post but I wanted a more complete version.

My ME seems to fluctuate quite a bit and for relatively short periods. Relapses last about 2-4 weeks for example.

Pain is sporadic, from background aches to pain that puts you on the verge of tears and covers your entire body.

Numerous gastro problems. Acid reflux, lactose intolerance, bloating, possible IBS but I don't want to self diagnosis and don't see the point getting one.

Fatigue! This is not tiredness, I do not get particularly tired. Fatigue means my body will not move, it's like flu but without much of a fever. Sometimes difficult to talk.

Difficulty regulating body temperature, hot flushes are common (not fever).

Neurological symptoms. Blurred vision, dizziness, inability to concentrate, difficulty finding words, extreme forgetfulness (sometimes forgetting something moments after being told even when trying hard to remember).

Mental health problems. Not really much of an issue, suffered from depression after 3/4 month but treated successfully since. No problems with anxiety.

Alcohol I can tolerate but hangovers are very long and not much tolerance. I can't cope with caffeine well, feel confused and can easily stay awake for 24 hours on a single cup.

Most importantly all these symptoms are not improved by exercise. Exercise has put me in relapse every single time.

There's probably a few other minor things I can't remember right now (lols) but that's the main stuff. Hope people can relate.